Tuesday, December 14, 2010

Traumatic Brain Injury Online Resources

 The online world are full of potential resources you can use related to Traumatic Brain Injury. There are a few that are worth highlighting.
l Brain Line: Traumatic Brain Injury and Head Injury Resources
   l http://www.brainline.org/
 l Brain Line provides a wide range of information regarding TBI, from what TBI is, to informative videos and podcast,  to headlines in the news, to resources for those with a TBI, caregivers and professionals.  

l Traumatic Brain Injury Services of California
l CCCIL, in addition to being a Independent Living Center, is also one of seven  TBI Service Sites in California. The mission of TBISCA is to ensure that adults with a traumatic brain injury have the necessary services to enhance self-sufficiency.
TBI sites core services include, Information and referral, community reintegration, supported living, vocation services. 
 
l Brain Injury Association and Brain Injury Association of California
l Brain Injury Association is a nation wide organization brain injury advocacy group of which the Brain Injury Association of California is a member of. Both provide excellent resources, webinars and advocacy on both state and national level

Wednesday, December 8, 2010

Media Outreach Handbook

We have a new update on the CATBI.org website. In a previous post we had updated posting the Expanding TBI Services Manual. The manual covers many aspects of our development of a model for California and strategies to build capacity to serve civilians and veterans with traumatic brain injuries (TBI).
Another integral part of the manual is our Media Outreach Handbook. What we have just posted to our main page for reference and can be found on the home sidebar. This comprehensive handbook to aide TBI organizations in conducting media outreach was developed in a collaborative effort with the media-consulting firm, Paschal Roth Public Affairs.
In the handbook, the concept of ‘earned media’ or publicity outside the realm of paid advertising. Also included are ways to create a story that will resonate with the press such as Role of the expert by providing a human element and including a human focus and responding to what is going on in the news.
One of the more recent trends in media has been a shift in emphasis positive local, or community oriented stories. The handbook provides samples of a news advisory, press release, sample statement, news article and letter to the editor that have been generated throughout the project for reference.
Hopefully, these will serve as a solid resource as another way to outreach for people with TBI through media.

Wednesday, December 1, 2010

International Day of Persons with Disabilities

On Friday, December 3rd, will be the 29th annual observance of the International Day of Persons with Disabilities. This day was established by the World Program of Action concerning Disabled Persons, adopted by the United Nations General Assembly in 1982. 

 This day was established to cultivate an increase level of awareness and understanding of disability issues in our global society with a focus on the rights of persons with disabilities. Part of this day is to advocate for the integration of persons with disabilities in every aspect of the political, social, economic and cultural life of their communities. The ultimate goal is to make it possible for those with disabilities to have full and effective participation in society.


Many people who acquired a traumatic brain injury and live with subsequent disabilities were often those who were at the peak of their physical and cognitive abilities. For teenagers or young adult many receive their TBI from bicycle, motorcycle, and sports accidents. Cops, fire fighters and service men and women receive their TBI in the line of duty. Both groups left to face subtle and extreme differences and abilities, some having to learn how to walk and talk again. Many take time to cope with their acquired disabilities and work hard to make the most of their abilities.

This coming year, on January 23rd, California will be celebrating the life of Ed Roberts  who some deem the the “father of the independent living” movement for people with disabilities and special needs.  Ed, who was a quadriplegic due to polio as a teenager experienced what many with a TBI find themselves facing. He used the challenges he faced by society to become a fierce advocate for the disability community.

Although there is a ways to go for complete equality, these two days are milestones in the fight for equality for those living with disabilities and have paved the way for the services, awareness and laws we have today.

Tuesday, November 23, 2010

Expanding TBI Services Manual

As part of the Honor Independence Imagine Independence project, it is best to document the process as well as the results.  The link below directs you to the updated Expanding TBI Service Manual listed on our main website.


The manual serves as an accounting of the process used to increase capacity for independent living centers (ILC or CIL) to serve people who have had a Traumatic Brain Injury (TBI). This handbook covers best practices and components of providing services and outreach to people with a traumatic brain injury throughout California.

Tuesday, November 16, 2010

Returning Monterey County veterans learn to live with traumatic brain injuries

Two of our own, Doug Chandler and Jeanne Obrien we featured on the front page of the Salinas Californian in honor of Veteran's Day on November 11th 2010. Jeanne is a member of our Honor Independence Veterans TBI Advisory Committee and was interviewed about her experience in the military as well as her experience having a TBI or traumatic Brain Injury from her service. This will link you to the article but it has been listed below.


Returning Monterey County veterans learn to live with traumatic brain injuries

Group hopes to raise awareness of traumatic brain injury

BY SUNITA VIJAYAN • svijayan@thecalifornian.com • November 11, 2010


For two years after her return to Monterey County, retired U.S. Army veteran Jeanne OBrien wondered about her sanity.
Injured while stationed in Afghanistan during Operation Enduring Freedom, the Marina resident recalled Tuesday that it wasn't until she went to the Veterans Affairs Palo Alto Health Care System in May 2009 that she learned the reason for her memory loss, problems with thought and speech processes and motor deficiencies that is keeping her in a wheelchair as a precaution.
Traumatic brain injury, OBrien explains, a condition she received in 2007 while guarding ammunition that was awaiting pickup from another company. OBrien, 40, a driver for the U.S. Army 82nd Airborne division, said a gale force wind had knocked over a piece of plywood which then struck the back of her head. She said her head bounced between the plywood and a metal can used to store the ammunition.
"I can laugh about it now, but it really isn't funny," OBrien said. "The army didn't say I had it [at first]. I didn't find out until I was dealing with [the VA in] Palo Alto. That was two years ago ... two years of wondering if I was going crazy."
As the nation celebrates Veterans Day, a nonprofit organization — the Central Coast Center for Independent Living — hopes to raise awareness of traumatic brain injury among returning veterans from Iraq and Afghanistan and the services available for these men and women as well as their families.
In November 2009, CCCIL received a one-time grant from the California Department of Rehabilitation — made possible through President Obama's American Recovery and Reinvestment Act of 2009, according to its website. The grant enables the nonprofit group to better serve veterans and other survivors of traumatic brain injuries. The Salinas-based organization serves residents of Monterey, San Benito and Santa Cruz counties.
The core services the organization provides in the program are support groups, information and referrals on housing and legal issues, technological assistance and self advocacy, said Doug Chandler, the traumatic brain injury expansion project manager, on Tuesday.
"[Traumatic brain injury] is deemed the silent epidemic because it often goes undiagnosed," Chandler said.
The condition is often undiagnosed, he said, because of the similarities in symptoms as post-traumatic stress disorder. Chandler said symptoms of the condition include memory loss, impaired thought processes, and vision and hearing problems.
There are nearly a quarter of a million survivors of the condition within the state, he said. According to the Center for Disease Control and Prevention, the condition affects 1.7 million people and kills 52,000 people a year.
Traumatic brain injury is defined as an injury from an external blow to the head — from a bike or car accident to violence or a fall. Effects from the injury include anger issues, depression and memory loss.
Chandler said the group serves nine veterans right now through the program, which is one of seven throughout the state. The organization is trying to expand its services to veterans, he said. As part of its expansion efforts, Chandler said, an advisory committee of eight veterans with TBI was created to raise awareness and further education efforts. He said the program is also working on providing employment services for those with TBI as part of a pilot project.
There is a sense of immediacy, Chandler said, as the VA deals with a large number of returning veterans.
Officials said traumatic brain injury is becoming the signature wound of the wars in Iraq and Afghanistan. Government reports find that 65 percent of these veterans treated at Walter Reed Army Medical Hospital in Washington D.C. were diagnosed with the injury.
Because of her injury, OBrien said, she now stutters — more so when she's nervous. Now on medication, she needs alarms to remember to take them. OBrien said she doesn't read as well as she used to and has major difficulties remembering names and directions.
Bound by a wheelchair for fear of falling and injuring her head further, she said she's learning to walk again with the help of a physical therapist.
OBrien said programs like the one CCCIL offers are crucial for veterans or other people with her condition, especially when it concerns raising awareness among their families.
"It's fantastic, but there are a lot of people I've come across who have TBI who don't know where to go," she said, adding that more publicity for these programs is needed.
Retired U.S. Army staff Sgt. Victor Estrada, 25, of Salinas, is also a survivor.
On Sept. 25, 2005, Estrada said, he was wounded by an improvised explosive device in Iraq. The roadside bomb took out half of his skull, he said, leading to a craniotomy. Estrada said the injury put him in a coma for a month, during which he suffered a stroke. When he woke up, he said, he found out he was paralyzed on his left side.
Estrada said he was in the U.S. Army's 1st Infantry Division — the "Big Red One" — and came out of the 75th Ranger Regiment. Before Iraq, he said, he served a tour in Afghanistan. For his efforts, Estrada said, he was awarded two Purple Hearts and a Bronze Star Medal of Valor.
For the past two years, he said, he has been going to the VA in Palo Alto regularly for therapy. Estrada said his left leg is about 90 percent healed and he can walk again. As a patient within the program, he said, his daily routine includes going through recreational and physical therapy, and attending support and cognitive training groups.
While it took him a while to seek help, Estrada encourages returning veterans to get assistance as soon as possible whether it is through support groups or therapy.
"They help you not just cope, but they teach you ways to deal with it to carry on with your life," he said.

Tuesday, November 2, 2010

Veterans Day : Collaborating to Honor Veterans Year Round

Entering November implies Veterans day is fast approaching and provides a day as a society to honor all of our veterans who have served in U.S. War.

In California there have been major efforts by communities and families to stretch the spot light on veterans to shine throughout the year. One major effort that started in June of 2007 has been the California State Wide Collaborative started a mother of a marine, Mary Ellen Solano.  She started the efforts when she witnessed firsthand, how many veterans were falling through the cracks in society.

The mission of the collaborative is to be a strong voice advocating for a wholistic, compassionate continuum of services, treatment and care for our service members, veterans, families, care givers and care providers. The statewide meetings provide a forum to share information and education, raise awareness, focus outreach and promote strategic partnerships that will streamline and improve access to health and human services for veterans. By building fully integrated partnerships of Federal, State, Local and Community, the collaborative hopes to best support our military and families.
The goal set by Mary Ellen is to “have a county collaborative in all 57 counties in California.” With each community bringing unique needs and services for veterans. Currently, there are have been several collaborative that have branched out from the state wide to meet those needs locally including Placer county, Alameda/East Bay, San Joaquin, Monterey and  new ones that are forming in Ventura, Santa Rosa and six other northern California counties.
By continuing to tighten our communication and efforts in California, we can better work to assure that individuals and veterans don’t fall through the cracks but rather can connect with the close nit network that has been created.

Tuesday, October 26, 2010

Central and Southern California Webinars

Yesterday, we wrapped up our third webinar for our Traumatic Brain Injury Statewide Webinar Series “Improving Service Coordination for People with a TBI”. On October 21st the first Central California TBI webinar and yesterday, Monday October 25th we hosted a webinar for Southern California. In both webinars, Lynda Eaton, a physical Therapist at the Mercy General Hospital continued her presentation about Strategies for Working with the TBI Consumer.

 Presenting for the central California webinars, was Jenny Oshiro from the TBI Site - Janet Pomeroy Center in San Francisco. Jenny provided information on the variety of available resources. She emphasized that they offer direct services for San Francisco County but for the outlying areas they act as a resource to allow others to provide accessible services for people with a TBI.

Also presenting for Central California was Tim McKay, who provided a consumer perspective on living with a TBI. Tim is a consumer of Central Coast Center for Independent Living (CCCIL) and is on the Civilian TBI Advisory Committee for this project. Tim and Jenny talked about the services and barriers that are specific to Central California. Tim emphasized the difficulties with insurance coverage and the missed opportunities from delays in treatment authorization. The first year of treatment post injury is when the most recovery takes place.

In our Southern California Webinar, we were honored to have five Traumatic Brain Injury Service For California (TBISCA) Sites on the call.  In addition to CCCIL and Lynda from Mercy Hospital, also presenting a brief overview of their Southern California region TBISCA sites were Robert Almaraz from the Betty Clooney Foundation and Christina Hutchison from Options Family of Services.  

The fifth site present and the main presenter was Claudia Ellano providing an overview of services available through St. Jude Medical Center. She discussed some of the difficulties more rural areas have with getting services. Presenting a consumer perspective from Southern California, James Marshall talked about the challenges of having changes in service providers within an agency. He emphasized the need for continuity of services because of the energy it takes to get a new case worker up to speed and the complexity of Traumatic Brain Injury.

Overall, we were much honored to have such a great group of presenters leading our first set of state wide trainings as well as the participation of all those who attended. You can access the webinar archive at our main website at catbi.org.   

Tuesday, October 19, 2010

October 19th Northern California Webinar Summary

Today, on October 19 we had our Northern California webinars, our first of three, Traumatic Brain Injury Statewide Webinar Series titled “Improving Service Coordination for People with a TBI”. 

Lynda Eaton, a physical Therapist at the Mercy General Hospital and Traumatic Brain Injury Site for California presented on Strategies for Working with the TBI Consumer.  Lynda began by defining Traumatic Brain Injury as being caused from external forces and the difference between those and other types of brain injuries.  She detailed the impacts on memory and the physical, sensory, cognitive, emotional and behavioral changes that TBI has on a person.

Strategies she suggested for working with consumer with TBI. One was to have them or assist them with developing a daily routine in order to expend the least amount of mental energy. She suggested that they use a daily planner that realistically estimates task completion times and to spend 5-10 minutes each morning and night going over tasks they need to do for the day. You can also help your consumer by helping them find methods to say focus, rest, and to find their time most brain-intensive work at their most productive time of day.  

Presenting a consumer perspective, Robert Cline provided spoke about life with a TBI discussed his journey to learning how to manage his life. This included assistance that he received through American River College and his struggle to find employment. He now works part time with the help of his parents and stated that finding employment is difficult for people with TBI. Robert and Lynda discussed the services and barriers that are including their some of frustrations with loss of time for early treatment due to government and insurance funding.  They also spoke about how crucial it has been to connect to knowledgeable community partners to assist others with TBI in getting the services they need.

We were enthusiastic about this first webinar and the feedback we received.  We will be doing our next webinars on focusing on the Central Coast for Thursday October 21st,  and our Southern California webinar for Monday October 25th.

Stay tuned for our upcoming set of webinars. In March we will be hosing the VA Services and Systems for Veterans with TBI. In June we will be hosing the Maximizing Community Resources for People with TBI. We are excited to be bringing these trainings to continue the collaboration, relationship building and know how to be able to provide quality services to not only those with a Traumatic Brain Injury and their families, but also all those with disabilities. I would like to thank our participants from CFILC, Department of Rehabilitation, Centers for Independent Living in the region and the California Health and Human Services for taking part in the webinar.

Tuesday, October 12, 2010

Register for Statewide Webinar Series on Traumatic Brain Injury: Improving Service Coordination for people with a TBI

Central Coast Center for Independent Living will be hosting a statewide webinar series on Traumatic Brain Injury. Doug Chandler and Crystal Cardenas Loutzenhiser presented information on these webinars at the recent Statewide CFILC Meeting in Garden Grove.

We strongly encourage key community partners to participate. One of our primary goals is to facilitate partnerships with organizations that work with consumers with a TBI to best serve consumers. The webinars will provide training on TBI, present information about the TBI sites in California and provide a consumer perspective on services for people with a TBI.
Webinar Schedule
The first Statewide Webinar Series on Traumatic Brain Injury will be "Improving Service Coordination for people with a TBI". Below is schedule according to region.
Tuesday, October 19th Northern California 10:00 – 11:30 a.m.
§  Lynda Eaton  - Mercy General Hospital  
§  Robert Cline  - California TBI Advisory Board
Thursday, October 21st Central California 10:00 – 11:30 a.m. (This includes the San Francisco Bay Area)
§  Janet Pomeroy Center
§  Tim McKay - Central Coast TBI Advisory Committee
Monday, October 25th Southern California 10:00 – 11:30 a.m.
§  Claudia Ellano Ota  - St. Jude’s Brain Injury Network
§  James Marshall - California TBI Advisory Board


Who might you invite to participate?

§  Independent Living Centers
§  Department of Rehabilitation
§  Traumatic Brain Injury Service Sites
§  Disabled Student Services at Local Community and Four Year Colleges
§  Speech Pathologists
§  Neurologists and Psychotherapist
§  Occupational Therapist/Physical Therapist
§  Vision and Hearing Resources and Specialists
§  Senior Network
§  Homeless/Housing Services
§  Rape Crisis Centers
§  United Way
§  Veterans Organizations

How to Register?
Please email Crystal Loutzenhiser : Cloutzenhiser@cccil.org or call at 831-757-2968 to RSVP at least one business day prior to the webinar.

Monday, October 4, 2010

Effective Navigation Tips for using the CATBI.org website...

Effective Navigation Tips

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Alternative methods to browse the Web

A browser is the software that enables you to see or hear Web pages. Internet Explorer, Firefox, Mozilla, Netscape, Safari and Opera are popular graphical browsers, and Lynx is a well known text browser. Many individuals who are blind or have impaired vision surf the Web by using screen readers such as Jaws, Window-Eyes, IBM Home Page Reader and Hal, to name a few.

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There is no sure-fire browser guaranteed to render pages as designed without crashing. Selecting the right browser depends primarily on your operating system (Microsoft Windows, Macintosh or Linux).
The list of browsers that follows is intended to serve as a starting point and should not be considered comprehensive. Macintosh users, particularly those using OSX and newer, definitely will want to download a browser other than Microsoft Internet Explorer, as this is not being supported on these operating systems.

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Look at the top of the browser screen. Above the buttons will be a series of menus, and at the far right is one entitled, "Help." Click on that and go to the bottom menu item. Depending on your browser, it will read something like, "About Internet Explorer," "About Communicator," or "About Opera." Click on that item, and the next screen will show you what version you have. Often, if you are using an older version, the screen will include a link to check for updates.

Make Your Browser Work for You

Most all browsers allow you to adjust the settings in your browser to optimize your Web experience. The specifics of each scenario below will vary among browsers, but the principles are common to all.

Text too small and hard to read - or too large and clunky?

Look at the top of the browser screen. The second or third item from the left will be titled View. Click on this and look at the pull-down menu: in Internet Explorer, click on Text Size; in Netscape, click on Text Zoom; in Opera, click on Zoom. Generally, too, the text size you view is also the size that will be printed.

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Before you print out the page, click on File, then Print Preview. If you can see that you'll lose the right margin, then go back a step and click on File, then Page Layout. Change the page orientation from portrait to landscape, and perhaps even extend the margins a bit. Now print.

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Then turn on or turn off "Print Background Colors and Images." In Internet Explorer, this is under Tools/Internet Options/Advanced. In Netscape, it's under Print Preview/Page Setup. In Opera, it's under File/Print Options.

Accessibility Help for Navigating the CATBI.org Website

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Each Level-3 page provides an external link to content that exists outside of the CATBI.org website. Users should click on the browser's back button to return to the CATBI.org web page. Navigation features within Level-3 web pages may significantly differ from the CATBI.org website.

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You may navigate throughout this site by mouse or by keystroke. Pressing the "Tab" key will advance you to the next link option, and pressing the "Enter" key will take you to the linked document or site. If you need to go back to the previous link, just press the "Shift" and "Tab" keys.
Need help to tune-up your Web Browser? Visit the Browser-Help page on our website.
Learn effective navigation tips to improve your accessibility.